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Home > Research > Behavioral and Social Science Resources
Find TB Resources connects you to a worldwide library of online resources, training, and educational materials
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TB Behavioral and Social Science Resources

Welcome to the TB Behavioral and Social Science Resources webpage, a part of the TB Education & Training Resources website. The three buttons above are used to search, submit, and order TB educational and training materials from the main website. TB behavioral and social science resources can be found on this webpage (below). The content on this page was last modified on 09/29/2006.

This TB Behavioral and Social Science Resources webpage provides a range of behavioral and social science resources focused on the prevention, control, and elimination of TB. From this webpage, you can access the following:

  • The Tuberculosis Behavioral and Social Science Research Forum Proceedings
  • Research Projects
    • CDC-Sponsored Projects
    • Other Projects (coming soon)
  • Tools and Instruments
    • Focus Group Discussion Guides
    • Interview Guides
    • Surveys
  • Literature Database and Literature Review Report
  • Other Resources and Activities
  • Submit Your TB-related Behavioral and Social Science Resources

The Tuberculosis Behavioral and Social Science Research Forum Proceedings

The Centers for Disease Control and Prevention (CDC), Division of Tuberculosis Elimination (DTBE) convened the TB Behavioral and Social Science Research Forum: Planting the Seeds for Future Research in December 2003 in Atlanta, GA. The goals of this forum were to identify and prioritize TB behavioral and social science research needs and gaps.

The Tuberculosis Behavioral and Social Science Research Forum Proceedings

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Research Projects

This section provides descriptions of current TB behavioral and social science activities sponsored by CDC and other organizations. Research projects listed in this section include research that focuses on behavioral, sociological, or cultural factors influencing TB prevention and control. In addition, research projects that utilized behavioral and social science methods or applied social science theory or concepts were selected. For additional information, please contact the Principal Investigator(s) listed for each project.

Click on the links for the following activities for more detailed project information.

Note: The following links will open the page in a new browser window. Projects are listed in reverse chronological order.

CDC-Sponsored Projects Project Start Date
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1. Enhanced Surveillance to Identify Missed Opportunities for Prevention of Tuberculosis in the Foreign-Born 2005
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2. Evaluation of Access to and Acceptance of HIV Counseling and Testing Among Patients with TB in Rwanda 2005
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3. Study of Factors Associated with Acceptance of, Adherence to, and Toxicity from Treatment for Latent Tuberculosis Infection: Phase 3 - Prospective Cohort Study of Acceptance and Adherence 2005
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4. Addressing Tuberculosis (TB) Among African Americans in the Southeast: Identifying and Overcoming Barriers to Treatment Adherence for Latent Tuberculosis Infection (LTBI) and TB Disease 2003
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5. Primary Care Management of Latent Tuberculosis Infection (LTBI) and Tuberculosis Disease Among Immigrant Populations: A Study of Barriers and Facilitators 2003
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6. Culturally Appropriate TB Educational Materials for Leaders and Staff of Hispanic Service Organizations 2003
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7. Barriers Associated with TB Medication Adherence Among Chickasaw County Residents with Latent TB Infection 2002
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8. Perceptions of Tuberculosis Among Foreign-born Persons: An Ethnographic Study 2002
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9. Factors Influencing Health Care Workers' Adherence to Work Site Tuberculosis Screening and Treatment Policies 2001
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10. Factors Associated with Identifying Tuberculosis Contacts 1999

Download all CDC-Sponsored Projects listed above Download all CDC-Sponsored Projects listed above

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Tools and Instruments

This section contains tools and instruments, including focus group guides, interview guides, and surveys, that have been used in TB behavioral and social science research activities. Please note that some of these tools and instruments may not have been validated or peer-reviewed. For additional information, please contact the Principal Investigator(s) listed on each tool or instrument.

Note: All tools, instruments, and questions listed on this website are associated with specific studies, and should be reviewed within the context of the study from which they were derived. A description of the study associated with each tool or instrument is provided here. In addition, contact information for the Principal Investigator of each study is provided. If a tool, instrument, or question is used outside of the study from which it was derived, it should undergo appropriate formative research including pilot testing with the target audience to determine if it is appropriate for use.

Focus Group Discussion Guides
Project Description Guides
Barriers Associated with TB Medication Adherence Among Chickasaw County Residents with Latent TB Infection (2002)
  • Chickasaw County Compliant to Treatment for LTBI Group
  • Chickasaw County Noncompliant to Treatment for LTBI Group
  • Chickasaw County Provider Group
Factors Associated with Identifying Tuberculosis Contacts (1999)
  • Focus Group Discussion Guide: TB Patients Born in Mexico
  • Focus Group Discussion Guide: TB Patients Who Identified Few Contacts
  • Focus Group Discussion Guide: Health Department Staff Who Conduct Contact Investigations
Culturally Appropriate TB Educational Materials for Leaders and Staff of Hispanic Service Organizations
  • Discussion Guide for Phase I Focus Groups (APHA): Perceptions of TB in the Hispanic Community
  • Discussion Guide for Phase II Focus Groups: Reactions to TB Messages
  • Discussion Guide for Phase III Focus Groups: Reactions to TB Brochures and Materials
Primary Care Management of Latent Tuberculosis Infection (LTBI) and Tuberculosis Disease Among Immigrant Populations: A Study of Barriers and Facilitators
  • Discussion Guide: Focus Group I: Topic Generation
  • Discussion Guide: Focus Group II: Model Evaluation

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Interview Guides
Project Description Guides
Study of Factors Associated with Acceptance of, Adherence to, and Toxicity from Treatment for Latent Tuberculosis Infection: Phase 3 - Prospective Cohort Study of Acceptance and Adherence (2005)
  • LTBI Interview Guide: Initial Patient Interview
  • LTBI Interview Guide: Follow-up Patient Interview
Perceptions of Tuberculosis Among Foreign-born Persons: An Ethnographic Study (2002)
  • Study Participant Interview Guide
Enhanced Surveillance to Identify Missed Opportunities for Prevention of Tuberculosis in the Foreign-Born
  • Preventing Tuberculosis in the Foreign-Born: Adult Participant Interview Form
  • Preventing Tuberculosis in the Foreign-Born: Pediatric Participant Interview Form
Note: These tools and instruments are available in several languages. Please contact the Principal Investigator for additional information.
Primary Care Management of Latent Tuberculosis Infection (LTBI) and Tuberculosis Disease Among Immigrant Populations: A Study of Barriers and Facilitators
  • Individual Interview Guide
  • Demographic and Practice Characteristics Questionnaire

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Surveys
Instruments Project Description
National Health Interview Survey: Adult/Core: AIDS-Section 2000-2006

A multi-purpose health survey conducted by the National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention (CDC), and is a principal source of information on the health of the civilian, non-institutionalized, household populations in the United States. In 2000, tuberculosis questions were included in the permanent set of basic health questions which remain stable from one survey year to the next.

National Health Interview Survey - 1994, 1995 AIDS Supplement Tuberculosis Questions
  • Related Article: Only one third of US adults can correctly indentify how tuberculosis is spread

The National Health Interview Survey contains a set of basic health and demographic questions that remain stable from one survey year to the next. Additionally, one or more sets of supplemental questions are embedded within the survey, which focus on current health topics and vary each survey year. Tuberculosis questions were included in the HIV/AIDS Supplement in survey years 1994 and 1995.

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Literature Database and Literature Review Report

The Division of Tuberculosis Elimination sponsored a systematic review of published TB behavioral and social science literature (1980-2004). Articles were reviewed using an abstraction tool. Data collected from 246 TB behavioral and social science articles were entered into a Microsoft Access database. These articles served as a basis for the Literature Review Report.

Note: This Database is downloadable as an .mdb file - you must have Microsoft Access to view the contents of this database. Some systems may not allow download of a file this type. For help with downloading and using Access, users should contact their local technical help desk.

Literature Database

Literature Review Bibliography

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Other Resources and Activities

This section describes other TB behavioral and social science-related resources and activities.

Tuberculosis Research and Control - Anthropological Contribution
This article represents a review of TB-focused anthropological and social science literature, highlighting research that has many implications and applications for TB control practice.

The Tuberculosis Epidemiologic Studies Consortium (TBESC)
A national collaboration of tuberculosis researchers, established by the Division of Tuberculosis Elimination (DTBE) in 2001 to strengthen and coordinate tuberculosis research. Its 21 sites include academic institutions, public health departments, hospitals, and for-profit and non-profit organizations. The Consortium’s mission is to conduct studies that are relevant to front-line TB programs in the areas of epidemiologic, behavioral, economic, and operational research.

The TB Education and Training Network (TB ETN) Cultural Competency Resource Guide
This resource guide was developed by the Cultural Competency Subcommittee of TB ETN. The guide includes a list of organizations, readings, and assessment tools associated with cultural competence and health.

Qualitative Research Guidelines Project
The Robert Wood Johnson Foundation has developed a website that will be a resource for those who are interested in designing, writing, reviewing and reporting qualitative research, featuring a blog to elicit feedback and foster dialog among a community of qualitative researchers.

Stop TB Partnership Advocacy, Communication and Social Mobilization Working Group
To ensure TB free communities through the mobilization of economic, community and political resources, by promoting Advocacy, Communications and Social Mobilization (ACSM) activities for TB control at global and national levels, particularly through the mobilization of an additional US $31 billion for TB activity worldwide in the 2006-2015 period.

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Submit Your TB-related Behavioral and Social Science Resources

We encourage you to submit TB-related behavioral and social science resources for possible inclusion on the TB Behavioral and Social Science Resources webpage.

Please send an email to findtbresources@cdc.gov with a description of the resource, and if available, an attachment of the resource or a web link. The email should also include your contact information.

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Disclaimer: The information on the Find TB Resources Website is made available as a public service. Neither the Centers for Disease Control and Prevention nor the National Prevention Information Network endorses the organizations, Website s, and materials presented. It is the responsibility of the user to evaluate this information prior to use based on individual, community, and organizational needs and standards.

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